Meet Supporter, Charlotte

Meet Supporter, Charlotte

OneVillage
Author
OneVillage
Author

OneVillage Team

2 days ago at 5:46 AM

My husband found a large mass on his neck one weekend and when he went in for it to be looked at he was simply handed a prescription for steroids. We both felt like this was something more serious so he called his doctor first thing on Monday and by the end of the week, he had a biopsy appointment. A couple of weeks later we were told it was Papillary Thyroid cancer. It wouldn't be until after surgery that it had already spread into his lymph nodes and could not be cured.


What is the biggest piece of advice you have for newly diagnosed patients or supporters of newly diagnosed patients?

For supporters, my advice would be... understand what you are saying yes to when you become your loved one's caregiver. Acknowledging your life has changed along with theirs is the key to not losing yourself in the process.

What is the most important thing you learned from your cancer experience?

Finding a way to enjoy your life in spite of it all is worth the effort.


What was the most difficult aspect of organizing care / community?

People want to help the way they think helping is supposed to look. I realized quickly that if I was strategic about seeking support and called on a person's strengths it made them feel good about helping and gave them a reason to really show up.


What are three words you would use to describe your cancer experience?

INFURIATING - it quickly becomes clear that cancer is not fair and it's infuriating to watch a loved one have to fight it.  LONELY - being a supporter of my husband threw me into a world I felt I was living in alone. Everyone wanted to be supportive but couldn't really handle the realness of my role.  Full-filling - My relationship with my husband was great before cancer. When he was diagnosed we banded together as a tight team. Our relationship became stronger than it already had.


Interested in connecting with Charlotte?

Instagram: @loveyourcaregivinglife


OneVillage
Author
OneVillage
Author
OneVillage Team

My husband found a large mass on his neck one weekend and when he went in for it to be looked at he was simply handed a prescription for steroids. We both felt like this was something more serious so he called his doctor first thing on Monday and by the end of the week, he had a biopsy appointment. A couple of weeks later we were told it was Papillary Thyroid cancer. It wouldn't be until after surgery that it had already spread into his lymph nodes and could not be cured.


What is the biggest piece of advice you have for newly diagnosed patients or supporters of newly diagnosed patients?

For supporters, my advice would be... understand what you are saying yes to when you become your loved one's caregiver. Acknowledging your life has changed along with theirs is the key to not losing yourself in the process.

What is the most important thing you learned from your cancer experience?

Finding a way to enjoy your life in spite of it all is worth the effort.


What was the most difficult aspect of organizing care / community?

People want to help the way they think helping is supposed to look. I realized quickly that if I was strategic about seeking support and called on a person's strengths it made them feel good about helping and gave them a reason to really show up.


What are three words you would use to describe your cancer experience?

INFURIATING - it quickly becomes clear that cancer is not fair and it's infuriating to watch a loved one have to fight it.  LONELY - being a supporter of my husband threw me into a world I felt I was living in alone. Everyone wanted to be supportive but couldn't really handle the realness of my role.  Full-filling - My relationship with my husband was great before cancer. When he was diagnosed we banded together as a tight team. Our relationship became stronger than it already had.


Interested in connecting with Charlotte?

Instagram: @loveyourcaregivinglife


7 comments

Last activity by Kay Baliwas

Kay
Kay Baliwas

Welcome to OneVillage Charlotte! Thank you for sharing your story with us! 💛

M
Melanie Jones

We don't talk about caregiving enough! I'm glad that there is work being done to highlight this! Thank you for the work you are doing Charlotte!

Gabi
Gabi Allen

So thankful for people like you!

C
Charlotte Bayala

Thank you! I really appreciate being able to share my story on a platform that works so hard to support caregivers. I appreciate the support from all of you... as much as we share pieces of who we are it's always a vulnerable process. ❤️

Anne
Anne Young

You're amazing Charlotte! Caregiving is hard work. Thank you for sharing your story.

David
David Sadigursky

So sorry for your husband's diagnosis, it's good that your relationship became stronger even after the diagnosis. What an inspiration to many!

Esther
Esther Hall

Thank you for sharing your journey with us Charlotte! I agree your whole life will change in an instant you or your loved one is diagnosed with cancer. But thanks for this community who makes sure that we know we are not facing this alone. It gives me strength to know that we are a community/village after all.

Anonymous

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